Sunday my folks and the kids departed Half Moon Bay and stopped by to see us on their way home. They parked the RV in the Stanford Mall parking lot. After a visit to see Gabriel I walked them back to the RV. I wanted a few photos of the kids but only had the Droid phone Norma (Amaya's Mom) had provided us (since Earle doesn't have his own phone).
The national mortality rate for hypoplast babies between these first two procedures (the Norwood and the Glenn) is 20%. Stanford's average has been 7% and they have recently instituted a home health monitoring program which has decreased their mortality rate close to 0. The program involves sending us home with a pulse oximeter, scale and charting forms. We will monitor him at home and report back bi-weekly (or when needed if something doesn't look correct) to one contact person. Everything is assumed to be cardiac until confirmed otherwise. This is THE place to be for little Gabriel.
Prior to leaving 3 west parents are taught and demonstrate multiple skills to prepare them for providing care to their infants at home. One of these skills is the placement of an NG (nasogastric) tube. An NG tube is a small catheter that enters the nostril and runs down the esophagus to the stomach providing a pathway for feeds and medicines. 26 cm of tube to get from Gabriel's nose to his stomach. My first placement went pretty well (if you're not Gabriel, he's getting sick of being probed and prodded).
Nick Offerman's woodshop.
Bacon though is not a suitable beverage flavor enhancer. As my facial expression does attest.
Amaya found us a portable crib on the Stanford faculty and employee network. We've converted the cottage into a Gabriel support room.